Two of Honi and Manase Faasisila's children, Moana, 7, and Leilani, 5, were both born with a rare genetic condition, Leber's Congenital Amaurosis, a form of blindness.

Moana has light perception and Leilani has some functional vision but doesn't see in 3D.

``When Moana was four months old she was diagnosed with this condition and we were told there was nothing we could do,'' Mrs Faasisila said.

``We had to live with it. It was devastating. We actually sat in the dark for a long time to imagine what it'd be like. We didn't know what to.''

The decision to have a second child was not easy.

``We didn't want Moana to be an only child and we wanted her to have a sibling and a friend so we had Leilani and she had the same condition. She was diagnosed when I was eight months' pregnant with my third child,'' she said.

Along came Tynisha, now 3, and Xuela, 2, remarkably both don't have the condition and baby number five is due in May.

The girls attend Baulkham Hills North Public School (Leilani starts kindergarten next year) and they are extraordinary children with a passion for music.

``They turned to music a lot. Moana plays piano wonderfully. She's even played at the Opera House and she's got a natural gift for music.

``Leilani loves to sing but Moana tells her when she's not hitting the right notes!''

The girls have a chance to see again. Thanks to an email from a friend, the Faasisilas have discovered that, although there are no guarantees, stem-cell treatment in China by Beike Biotechnology has given other blind patients improved vision.

The treatment costs $19,000 each. They have booked the treatment for March and have been raising funds for the girls with a Flight for Sight campaign.

Details, donations: pintum.com.au/sight or 0433981088.